The Association’s initiative was started by a group of people with rare diseases, of parents, friends and health professionals, who shared their own concerns about the huge daily needs of people with rare genetic conditions (adults and minors). Our first goal is: “Solidarity and mutual support between members of the Association and their families, as well as with other patients suffering from rare Genetic Diseases”. It is within this objective that we have created the Psychosocial Support and Special Inclusive Education programs.
